about

Bringing European Tay-Sachs & Sandhoff charities together.

The ETSCC was created to enable European charities to come together in the fight against Tay-Sachs and Sandhoff. Members  are all recognised charities in their country of origin.

The three aims of the ETSCC are to raise awareness of Tay-Sachs and Sandhoff, support the research for a potential treatment and provide a united European voice.

The members of the ETSCC meet once a year to discuss the progress of the research into Tay-Sachs and Sandhoff and the consortiums strategy.

Aims

Raising awareness

Members of the ETSCC are all dedicated to raising awareness and creating a deeper understanding of Tay-Sachs and Sandhoff in the wider community.

Supporting research

The ETSCC makes an annual group donation to the research into a potential treatment for Tay-Sachs and Sandhoff which is funded by each charity’s yearly membership.

European group

As a collective the ETSCC allows for small Tay-Sachs and Sandhoff specific charities to have a large European group help them meet their own specific charitable objectives.

Meet the team

Daniel Lewi
Daniel Lewi
Chairman
Beatriz Fernández
Beatriz Fernández
Vice-Chairman
Katy Lewi
Katy Lewi
Consortium Secretary
Professor Timothy Cox
Professor Timothy Cox
Medical Advisor
Natalia Suárez Rueda
Natalia Suárez Rueda
Charity Representative
Patricia Durao Lewi
Patricia Durao Lewi
Charity Representative
Benoit Clermont
Benoit Clermont
Charity Representative
Folker Quack
Folker Quack
Charity Representative