The three aims of the ETSCC are to raise awareness of Tay-Sachs and Sandhoff, support the research for a potential treatment and provide a united European voice.
The members of the ETSCC meet once a year to discuss the progress of the research into Tay-Sachs and Sandhoff and the consortiums strategy.
Members of the ETSCC are all dedicated to raising awareness and creating a deeper understanding of Tay-Sachs and Sandhoff in the wider community.
The ETSCC makes an annual group donation to the research into a potential treatment for Tay-Sachs and Sandhoff which is funded by each charity’s yearly membership.
As a collective the ETSCC allows for small Tay-Sachs and Sandhoff specific charities to have a large European group help them meet their own specific charitable objectives.