European Tay-Sachs & Sandhoff

Charity Consortium

EST.2013

Who We Are

The ETSCC was created to enable European charities to come together in the fight against Tay-Sachs and Sandhoff. Members are all recognised charities in their country of origin. The three aims of the ETSCC are to raise awareness of Tay-Sachs and Sandhoff, support the research for a potential treatment and provide a united European voice. The members of the ETSCC meet once a year to discuss the progress of the research into Tay-Sachs and Sandhoff and the consortiums strategy.

The ETSCC team

The aims of the ETSCC

The ETSCC was formed to give a European voice to patients, families and charities battling to find a cure for Tay-Sachs and Sandhoff disease,

Raising awareness

Members of the ETSCC are all dedicated to raising awareness and creating a deeper understanding of Tay-Sachs and Sandhoff disease.

Supporting research

The ETSCC supports the research into Tay-Sachs and Sandhoff and helps drive forward these projects so a cure can be found.

European group

As a collective, the ETSCC allows for country specific charities supporting Tay-Sachs and Sandoff have a unified voice against the diseases.

Charity members

The members of the ETSCC are each a registered charity in the country in which they operate in.

The CATS Foundation

ACTAYS

Hand in Hand gegen Tay-Sachs und Sandhoff

Vaincre les Maladies Lysosomales

Watch Our Story

#nevergiveup

Meet our charity Leaders

Daniel Lewi

Daniel Lewi

Chairman

Beatriz Fernández

Vice-Chairwoman

Katy Lewi

Consortium Secretary

Professor Timothy Cox

Medical Advisor

Patricia Durao Lewi

Charity Representative

Natalia Suárez Rueda

Charity Representative

Benoit Clermont

Charity Representative

Folker Quack

Charity Representative

José Daniel Vilhena

Charity Representative

The ETSCC has made a real difference to the Tay-Sachs and Sandhoff disease community - it has brought everyone together and put a spot light on these devastating diseases.

Daniel Lewi

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