European Tay-Sachs & Sandhoff
Charity Consortium
EST.2013
Who We Are
The ETSCC was created to enable European charities to come together in the fight against Tay-Sachs and Sandhoff. Members are all recognised charities in their country of origin. The three aims of the ETSCC are to raise awareness of Tay-Sachs and Sandhoff, support the research for a potential treatment and provide a united European voice. The members of the ETSCC meet once a year to discuss the progress of the research into Tay-Sachs and Sandhoff and the consortiums strategy.
The ETSCC team
The aims of the ETSCC
The ETSCC was formed to give a European voice to patients, families and charities battling to find a cure for Tay-Sachs and Sandhoff disease,
Raising awareness
Members of the ETSCC are all dedicated to raising awareness and creating a deeper understanding of Tay-Sachs and Sandhoff disease.
Supporting research
The ETSCC supports the research into Tay-Sachs and Sandhoff and helps drive forward these projects so a cure can be found.
European group
As a collective, the ETSCC allows for country specific charities supporting Tay-Sachs and Sandoff have a unified voice against the diseases.
Charity members
The members of the ETSCC are each a registered charity in the country in which they operate in.
The CATS Foundation
DOCE
ACTAYS
Hand in Hand gegen Tay-Sachs und Sandhoff
Vaincre les Maladies Lysosomales
Meet our charity Leaders
The ETSCC has made a real difference to the Tay-Sachs and Sandhoff disease community - it has brought everyone together and put a spot light on these devastating diseases.