Members of the ETSCC want to find a treatment for Tay-Sachs & Sandhoff.
Sharing information helps us achieve our aims in the fight against Tay-Sachs & Sandhoff.
A collective group has a stronger presence in making its voice heard.
The three aims of the ETSCC are to raise awareness of Tay-Sachs and Sandhoff, support the research for a potential treatment and provide a united European voice.
The members of the ETSCC meet once a year to discuss the progress of the research into Tay-Sachs and Sandhoff and the consortiums strategy.
Members of the ETSCC are all dedicated to raising awareness and creating a deeper understanding of Tay-Sachs and Sandhoff in the wider community.
The ETSCC makes an annual group donation to the research into a potential treatment for Tay-Sachs and Sandhoff which is funded by each charity’s yearly membership.
As a collective the ETSCC allows for small Tay-Sachs and Sandhoff specific charities to have a large European group help them meet their own specific charitable objectives.
Our aim is to help find a potential treatment for Tay-Sachs and its associated diseases. We are dedicated to reaching this goal by providing research funding.
By becoming a member of the ETSCC your charity will get the many benefits of joining a group who are all working towards the same goal. We will beat Tay-Sachs.
Share your work with other Tay-Sachs charities.
Receive help in achieving your charity objectives.
Fund the research into Tay-Sachs directly.
Opportunity to take part in new research projects.
Direct contact with other Tay-Sachs charities.
Contact the ETSCC to enquire about becoming a member.