ETSCC

A European group fighting Tay-Sachs

One goal. One group. One voice.

One goal

Members of the ETSCC want to find a treatment for Tay-Sachs.

👥
One group

Sharing information helps us achieve our aims in the fight against Tay-Sachs.

🔊
One voice

A collective group has a stronger presence in making its voice heard.

about

Bringing European Tay-Sachs charities together.

The ETSCC was created to enable European charities to come together in the fight against Tay-Sachs. Members  are all recognised charities in their country of origin.

The three aims of the ETSCC are to raise awareness of Tay-Sachs and its associated diseases, support the research for a potential treatment and provide a united European voice.

The members of the ETSCC meet once a year to discuss the progress of the research into Tay-Sachs and the consortiums strategy.

Aims

Raising awareness

Members of the ETSCC are all dedicated to raising awareness and creating a deeper understanding of Tay-Sachs in the wider community.

Supporting research

The ETSCC makes an annual group donation to the research into a potential treatment for Tay-Sachs which is funded by each charity’s yearly membership.

European group

As a collective the ETSCC allows for small Tay-Sachs specific charities to have a large European group help them meet their own specific charitable objectives.

Meet the team
Daniel Lewi
Daniel Lewi
Chairman
Eva Irran
Eva Irran
Vice-Chairman
Katy Lewi
Katy Lewi
Consortium Secretary
Professor Timothy Cox
Professor Timothy Cox
Medical Advisor
Beatriz Fernández
Beatriz Fernández
Charity Representative
Patricia Durao Lewi
Patricia Durao Lewi
Charity Representative
Ozcan Altinkaynak
Ozcan Altinkaynak
Charity Representative
Folker Quack
Folker Quack
Charity Representative

mission

We provide a single European voice for Tay-Sachs charities.

When you become a member, you will join the only European collective which is fighting Tay-Sachs.

Our aim is to help find a potential treatment for Tay-Sachs and its associated diseases. We are dedicated to reaching this goal by providing research funding.

By becoming a member of the ETSCC your charity will get the many benefits of joining a group who are all working towards the same goal. We will beat Tay-Sachs.

Membership benefits
👥
Information

Share your work with other Tay-Sachs charities.

Support

Receive help in achieving your charity objectives.

Research

Fund the research into Tay-Sachs directly.

Projects

Opportunity to take part in new research projects.

📱
Communication

Direct contact with other Tay-Sachs charities.

Join us

Contact the ETSCC to enquire about becoming a member.

members

Charity members of the ETSCC

Click on the charity name for more information



contact

Get in touch with us

Send us an email below

Send us your message

We will get back to you as soon as possible